
| Site Main / About Cystic Fibrosis / About CNCF / About Camp Jenney / Camp-0-Grams / Camp Photos / Email campjenney.org |
Concerned Nebraskans for Cystic Fibrosis is working hard to improve the quality of life of Cystic Fibrosis (CF) patients and their families, promote public awareness, and support research for Cystic Fibrosis. Concerned Nebraskans for Cystic Fibrosis (CNCF) is a Lincoln based non-profit support group comprised of family and friends of CF patients. Organized over 20 years ago, CNCF has remained a wholly volunteer organization. Because there is no paid staff to support, all proceeds raised by CNCF go directly to CF research, programs, and activities for CF patients and their families. CNCF raises part of their proceeds for CF by having a 'Sixty-Five Roses' Benefit Dance, and the clowns of 'Clowning Around for Cystic Fibrosis' volunteer their time and donate all the proceeds to CNCF. All the clowns are family and/or friends of CF patients. Although extremely important, fund raising for CF research constitutes only a portion of CNCF activities. CNCF is committed to public education about CF to aid in early diagnosis of the disease. CNCF funds Camp Jenney, the only summer camp for CF children and young adults in the Midwest, and one of the few in the United States. Every year children with CF from all over come to the site of Camp Kitaki for a week of fun and sun. It is the help from volunteer nurses, doctors, and respiratory therapists that makes Camp Jenney possible, and these children are provided a rare opportunity to act like kids. CNCF is proud to offer this to young CF patients every year at no cost. CNCF provides scholarships to CF patients for post secondary education and job training programs and grants for other types of expenses that CF patients must incur. With the huge expenses for prescriptions, treatments, and doctors and hospital bills CNCF hopes to continue its support for higher education opportunities for CF patients. Did you know about the Concerned Nebraskans for Cystic Fibrosis (CNCF)? The CNCF is a group of volunteers who help people with Cystic Fibrosis. If you would like to know how to get involved or volunteer call any of the CNCF board members listed below. Did you know that we sponsor the only summer camp in NE for kids, ages 7 to 18, with CF? For more information regarding Camp Jenney call Shelly Tyser at (402) 325-6066 or email pulmonarypa@windstream.net Did you know that we have clowns that raise money for CF? For more information regarding 'Clowning Around for Cystic Fibrosis' call Doris Lane at (402) 421-2345 or visit www.clowningaround.org Did you know that we offer college scholarships for college students with CF, and their siblings? For more information regarding the John Olson Memorial Scholarship please call Karen Gagner at (402)435-5180. Did you know that we have a fundraiser every February in Lincoln to raise money for CF? For more information regarding the 'Sixty-Five Roses' Benefit please call Linda Gagner at (402) 797-2365. Did you know that we support CF research and national fundraisers including Great Strides? For more information about getting involved with Great Strides call Peg Barrett at (402) 483-2342. |
| About Concerned Nebraskans for Cystic Fibrosis (CNCF) |
| Our Mission Statement |
| About CNCF |
| Working together to conquer Cystic Fibrosis .... CNCF members promise to continue working until a cure is found.... |
| Did You Know? |